The long and winding road to educating David

A short time ago, a friend asked if I wouldn't mind speaking with her sister, who had a child with a different learning style and was about to embark upon the long, difficult journey of trying to get the New York City Department of Education to educate her son. I was happy to and in the end, sent her some helpful hints which I compiled from my "Useful Numbers" and "Tracking Document" (which currently was 14 pages in length) to both help her learn what to expect and what she needed to do in the coming months to get Ruben what he needed.

Not two weeks after, I ran into a mom from David's former school, who asked if I could prep her and share with her what I'd experienced to help her daughter secure a spot in a school that better suited her needs.

I am in no way an expert or a professional. I am just a mom who set out on a quest to get her son educated in a way that worked for him. I had no clue what an IEP was. Or how to get an IAP. Or how to ensure that David received the "free and appropriate education" that he was promised, that was his right. But little by little, I learned. I'm happy to share it with you and hope that it helps.


Helpful Hints

I hope you find the information below helpful. I pieced it together from various tracking documents I’ve kept during our long, hard battle with the Department of Education to educate our dyslexic son David.

IAPs:
Jeanine Pollack, independent IAP/neuropsychologyst, Neuropsychological Arts, 26 Court Street, Bklyn, NY 11201, 718-237-2333, ext 11, a private evaluation is done over two full days and she writes a detailed (ours was 27 pages) report. Janine is great, very gentle, personable and capable.

The NYU Child Study Center, 212-263-6622, also does evaluations, shorter waiting time. http://www.aboutourkids.org/

Attorneys:Neal Rosenberg, 9 Murray Street, Suite 4W, NY 10007. 212-732-9450, one of the top 2 attorneys whose offices solely handle disputes against the Dept of Education. (The other is Regina Skyler, who specializes in autism) Neal gives a free consultation. After you sign with him, a certain amount is due and you have to keep suing the Dept of Ed each year. The team in Neal's office works together, they're all very capable, very accessible and supportive, real pros.

Schools:
The 4 schools that are Bd of Ed funded (they take $$ directly from Bd of Ed):
Churchill (E 29th, NYC)
Lowell (Queens)
Community School (Teaneck, NJ)
Gateway (W 61st St, NYC)

Open houses at various schools start as early as October for the following year. When you file admissions application there’s an application fee, usually between $50 and $100. You also need to provide copies of various school reports. I would contact a school at any time of the year, though, as people move out of state, change jobs, school status changes and openings can occur.

I’ve visited two of the above during open houses in early 2007. They are:

Churchill School, 301 East 29th Street, 212-722-0610, http://www.churchillschool.com/
I loved Churchill. We sent in an application but they said David didn't meet their profile. They said he has the skills but couldn't access them. (But isn't that exactly the type a child this sort of school would benefit?) Anyway, it has a big, beautiful campus, each floor was color-coded so students wouldn’t get lost (people who reverse numbers and letters often have a hard time figuring out what floor they’re on…2, 3, 5…all look the same.) Churchill goes from grade K-12.

The Gateway School, 211 West 61st Street, 6th floor New York, New York 10023 , 212-777-5966
http://www.gatewayschool.org/
Gateway was the first school I looked at and I didn’t like it. (However, I looked at it when it was located on Second Avenue, between 14th & 15th Street, so things could have changed since then.) In retrospect, I think I was shell-shocked that my child wasn't "normal" and might actually need a place like this. Maybe I was a bit judgmental and wasn't looking at the school with an open mind. Or maybe it was the icky parents at the open house who were most impressed with the school because of the beautiful renovation! I just wanted to find a place that would teach my kid to read. A good deal of the students seemed to have sensory issues; they called an assembly so we could see the student population, which wasn’t very ethnically diverse.

Private Schools:The Sterling School, 299 Pacific Street, Brooklyn NY 11201, 718-625-3502, http://www.sterlingschool.com/
Ruth Arberman started the school seven years ago for dyslexic son who’s now in 11th grade. She also teaches there and runs the whole shebang. The staff is Orton Gillingham-trained in multisensory educational tactics, a very successful reading program for kids with dyslexia and other language-based learning disabilities. The first time I called, Ruth spoke to me for an hour or more. She's a dynamo, full of information, extremely knowledgeable and very willing to help anyone who has a child with LD's. The school is tiny, in the ground floor of a brownstone, with less than 30 students. David was accepted here but we decided to go with a larger school with more on-site amenities (like OT, a gym). It was a difficult decision because Ruth is such an incredible woman.

And finally, David's school:
The Mary McDowell Center for Learning, 20 Bergen Street (lower elementary), 135 Summit Street (middle school), 23 Sidney Place (upper school), Brooklyn, NY, 11201, 718-625-3939- main number, Susan Krim, admissions. http://marymcdowell.org/
An independent Friends school for children with learning disabilities, has a little more than 200 students total in grades pre-k to 10 (they are adding a grade a year in high school, so in 2013 they will have 12 grades), the staff is very supportive, understanding and caring, and really wants your child to succeed. At parent-teacher conferences, the focus is on what your child does right, not what they do wrong. They follow the Quaker tenets of acceptance, community and fellowship, and also practice group moments of silence. It truly feels like family.

Important tip:
Keep a written record/tracking document with dates of meetings, what was discussed, what changes were implemented, etc., just in case you have to sue the Dept of Ed in the future. It’s more ammunition for you since they are shoddy with their record-keeping and the burden of proof rests with them, not you. In other words, they have to prove that they are providing your child with a “free and appropriate education” (their catch phrase).

Also, when a change is implemented by the Dept of Ed/your child's current school, it must be in place for 30 days to determine whether or not the new tactic is working. But hold them to the time frame (they easily lose track and often things fall between the cracks). If you’re not happy with the results, tell them so and ask for something else to be implemented.

Hang tough and be a persistent. It’s a long, hard road but well worth it in the end. Good luck!

Tuesday, September 20, 2011

Bi-Yearly Checkin

I noticed it's been almost 6 months since my last posting. I guess that's a sign that things are going well. David continues to improve at Mary McDowell Friends School and is almost performing at grade level. Albeit with tons of support, cues, and in a class of 12 with 2 teachers - plus much smaller groups for reading and math. The tuition is huge (almost as much as an Ivy League college costs) but it's worth every penny. He is confident, fun and empathetic, and also tries to get by doing as little work as possible. I'm not sure if this is because of his LD or just genetic. (One of his parents used to own a T-shirt that said, "Underachiever and proud of it." Hint: It wasn't me.)

David did well on his standardized tests with extra time and split between several days instead of over several hours like his non-LD classmates. He finished 6th grade with good reports and smiles. We had a wonderful summer mostly upstate, med-free. Lots of reminders about finishing the 2 books and accompanying 2 book reports he was assigned. But they got done, a little carelessly, but that's the nature of his beast, especially medication-free.

7th grade got off to a decent start almost 2 weeks ago. It marked the first time he would be commuting regularly to and from school via the train. (Although he did it a couple of times last year when the bus was really late or delayed by weather.) After pizza with his buds the first day, he ended up getting on the G train in the wrong direction but realized it at the first stop, jumped off and asked a cop how to get to his home stop. Got home safe and sound but lost his sneakers (long story). Has managed to keep track of his cell phone and train pass. And also learned that school transit passes still work after being washed.

Peter and I had our annual dance with the DOE and had to view the "appropriate" placement they found for him in a local school, the Secondary School for Law, which is housed in the John Jay High School complex. The metal detector was a nice touch. As was noticing 3 wall clocks during our visit, all with completely wrong times displayed--especially helpful for kids with LDs who don't know what time it is anyway. The 12:1:1 class had only 5 students. The 3 present were totally unengaged, despite the personal attention and efforts of their young, hip teachers (tattoo & nasal jewelry). The windows were thrown open to 7th Avenue's loud bus traffic and even adults without concentration issues had trouble following. Wrong on so many levels, and again, the sadness for the kids with no other alternative.

         Us three, this past summer.

Who knows what this year will bring for David. He is taking great joy in books, something I never expected. A trip to his prescribing doctor will tell if he needs a medication adjustment, which I assume he does because he's grown over the summer. MMFS staff has already noticed a bit of inattentiveness and is going to put him on a therapeutic listening program. Stay tuned!

Tuesday, April 5, 2011

Up to Speed

When I started this blog, I intended it to mainly be an information source for other parents of LD kids rather than a blow-by-blow description of our daily lives. But I cringe when I realized that I hadn't made an entry since last July. Here's my shot at a quick incapsulation of our lives since the summer. We traveled to Alaska the first two weeks of August, upholding David's request to visit a different national park every vacation. It was an incredible educational experience between the expansive parks, wildlife and incredible salmon fishing where David landed several whoppers and caught our lunch/dinner. His transition to middle school at the newly-renamed Mary McDowell Friends School went well, with a few bumps in the road in the beginning. There was a lot more homework (at least in the beginning) which he dragged out and made even longer. Things seem to have evened out. He's had two good parent-teacher conferences since then but still manages to be a master procrastinator, just like his dad. David seems to like having more responsibility and we are determined not to remind him a dozen times about his homework, leaving it to him to get it done. As per MMFS, we don't check it but he seems to do okay, has only had a few "re-do's" and even a few "check plusses." Our CES meeting with the DOE in the beginning of March went well, we think, though the psychologist seemed a bit testy with David's teacher, who kept reminding her that just because a child with LDs is in a better setting doesn't mean that the LD goes away completely. His reading and math have greatly improved but are still below grade level. We'll see when we get the IEP in the mail. And we recently heard that the DOE settled with us before going to impartial hearing, for a bit more than last year, which is great because the tuition went up, as it does every year. But I can't imagine David being in a public school setting because those programs are sorely lacking. In September, I visited the Brooklyn School for Global Studies where they found a spot for David, sending me this letter at the end of June, when there was no time to view the school. So I had to write a letter, as I do every year, explaining that I would be happy to look at the placement school...in September when school is in session. Of course, it was abysmal, on so many levels. I'm sure they will send an "appropriate placement" for next year which will be grossly inadequate. We recently had a checkup with David's behavioral specialist (the one who prescribes the meds) and she was very impressed at how much he has progressed, even over the past year. He scored higher on tests she administered and his curve has been even greater since he first started coming to her 3 years ago. Dr. V talked about some of her patients in 12:1:1 programs in public schools, how they have issues with bullies and how terrible the classes are. And how lucky we are to have a space in MMFS. I am thankful for this every day. As a person, David continues to develop into his own unique self. Still very into video games and role playing games. He has a great sense of humor and enjoys looking at funny vids online, especially involving animals. Some days he says he wants to be a zoologist, others a video game maker, others a psychologist. He doesn't seem to want to get rid of his toys, though he barely plays with them--just the dragons, weapons, and action figures. I know someday soon, he'll want to get rid of the kid stuff. Something I both look forward to and dread. He even took the train to school alone a few times. I worked him up from walking there while we took the same train to taking the train himself (after walking him to the station) when the bus was really late. Next year, I think we'll transition him into commuting himself. It's only 5 stops and about 4 blocks, a walk he knows well. My, how he has grown...

David ready to take the train alone to school for the first time in September 2011. No more "short bus."