The long and winding road to educating David

A short time ago, a friend asked if I wouldn't mind speaking with her sister, who had a child with a different learning style and was about to embark upon the long, difficult journey of trying to get the New York City Department of Education to educate her son. I was happy to and in the end, sent her some helpful hints which I compiled from my "Useful Numbers" and "Tracking Document" (which currently was 14 pages in length) to both help her learn what to expect and what she needed to do in the coming months to get Ruben what he needed.

Not two weeks after, I ran into a mom from David's former school, who asked if I could prep her and share with her what I'd experienced to help her daughter secure a spot in a school that better suited her needs.

I am in no way an expert or a professional. I am just a mom who set out on a quest to get her son educated in a way that worked for him. I had no clue what an IEP was. Or how to get an IAP. Or how to ensure that David received the "free and appropriate education" that he was promised, that was his right. But little by little, I learned. I'm happy to share it with you and hope that it helps.


Helpful Hints

I hope you find the information below helpful. I pieced it together from various tracking documents I’ve kept during our long, hard battle with the Department of Education to educate our dyslexic son David.

IAPs:
Jeanine Pollack, independent IAP/neuropsychologyst, Neuropsychological Arts, 26 Court Street, Bklyn, NY 11201, 718-237-2333, ext 11, a private evaluation is done over two full days and she writes a detailed (ours was 27 pages) report. Janine is great, very gentle, personable and capable.

The NYU Child Study Center, 212-263-6622, also does evaluations, shorter waiting time. http://www.aboutourkids.org/

Attorneys:Neal Rosenberg, 9 Murray Street, Suite 4W, NY 10007. 212-732-9450, one of the top 2 attorneys whose offices solely handle disputes against the Dept of Education. (The other is Regina Skyler, who specializes in autism) Neal gives a free consultation. After you sign with him, a certain amount is due and you have to keep suing the Dept of Ed each year. The team in Neal's office works together, they're all very capable, very accessible and supportive, real pros.

Schools:
The 4 schools that are Bd of Ed funded (they take $$ directly from Bd of Ed):
Churchill (E 29th, NYC)
Lowell (Queens)
Community School (Teaneck, NJ)
Gateway (W 61st St, NYC)

Open houses at various schools start as early as October for the following year. When you file admissions application there’s an application fee, usually between $50 and $100. You also need to provide copies of various school reports. I would contact a school at any time of the year, though, as people move out of state, change jobs, school status changes and openings can occur.

I’ve visited two of the above during open houses in early 2007. They are:

Churchill School, 301 East 29th Street, 212-722-0610, http://www.churchillschool.com/
I loved Churchill. We sent in an application but they said David didn't meet their profile. They said he has the skills but couldn't access them. (But isn't that exactly the type a child this sort of school would benefit?) Anyway, it has a big, beautiful campus, each floor was color-coded so students wouldn’t get lost (people who reverse numbers and letters often have a hard time figuring out what floor they’re on…2, 3, 5…all look the same.) Churchill goes from grade K-12.

The Gateway School, 211 West 61st Street, 6th floor New York, New York 10023 , 212-777-5966
http://www.gatewayschool.org/
Gateway was the first school I looked at and I didn’t like it. (However, I looked at it when it was located on Second Avenue, between 14th & 15th Street, so things could have changed since then.) In retrospect, I think I was shell-shocked that my child wasn't "normal" and might actually need a place like this. Maybe I was a bit judgmental and wasn't looking at the school with an open mind. Or maybe it was the icky parents at the open house who were most impressed with the school because of the beautiful renovation! I just wanted to find a place that would teach my kid to read. A good deal of the students seemed to have sensory issues; they called an assembly so we could see the student population, which wasn’t very ethnically diverse.

Private Schools:The Sterling School, 299 Pacific Street, Brooklyn NY 11201, 718-625-3502, http://www.sterlingschool.com/
Ruth Arberman started the school seven years ago for dyslexic son who’s now in 11th grade. She also teaches there and runs the whole shebang. The staff is Orton Gillingham-trained in multisensory educational tactics, a very successful reading program for kids with dyslexia and other language-based learning disabilities. The first time I called, Ruth spoke to me for an hour or more. She's a dynamo, full of information, extremely knowledgeable and very willing to help anyone who has a child with LD's. The school is tiny, in the ground floor of a brownstone, with less than 30 students. David was accepted here but we decided to go with a larger school with more on-site amenities (like OT, a gym). It was a difficult decision because Ruth is such an incredible woman.

And finally, David's school:
The Mary McDowell Center for Learning, 20 Bergen Street (lower elementary), 135 Summit Street (middle school), 23 Sidney Place (upper school), Brooklyn, NY, 11201, 718-625-3939- main number, Susan Krim, admissions. http://marymcdowell.org/
An independent Friends school for children with learning disabilities, has a little more than 200 students total in grades pre-k to 10 (they are adding a grade a year in high school, so in 2013 they will have 12 grades), the staff is very supportive, understanding and caring, and really wants your child to succeed. At parent-teacher conferences, the focus is on what your child does right, not what they do wrong. They follow the Quaker tenets of acceptance, community and fellowship, and also practice group moments of silence. It truly feels like family.

Important tip:
Keep a written record/tracking document with dates of meetings, what was discussed, what changes were implemented, etc., just in case you have to sue the Dept of Ed in the future. It’s more ammunition for you since they are shoddy with their record-keeping and the burden of proof rests with them, not you. In other words, they have to prove that they are providing your child with a “free and appropriate education” (their catch phrase).

Also, when a change is implemented by the Dept of Ed/your child's current school, it must be in place for 30 days to determine whether or not the new tactic is working. But hold them to the time frame (they easily lose track and often things fall between the cracks). If you’re not happy with the results, tell them so and ask for something else to be implemented.

Hang tough and be a persistent. It’s a long, hard road but well worth it in the end. Good luck!

Thursday, January 24, 2008

They walk among us

It never ceases to amaze me how many people are dyslexic. There's a new ad campaign, a huge billboard looming over Times Square with that famous picture of Albert Einstein sticking out his tongue. The tagline is something like, "Growing up, he was no Einstein." It's kind of heartening. Not that I want an Einstein, just a kid that can read at a serviceable level. David's smarty-pants enough. I don't need an E=MC2 genius cracking wise to me.

We were at a party upstate recently filled mostly with people we didn't know. I got into a conversation with a fellow who happened to live near us in Brooklyn. The dad of a two-year-old, Michael was curious about the quality of the local school, PS 107. I tried to explain in a "Reader's Digest" version that it was great if your child didn't have special needs, but not so great if your kid was dyslexic like mine. Michael's face softened a bit when he told me, "I'm dyslexic."

I was really interested to learn what growing-up was like for a dyslexic mildly successful freelance photographer. Basically, it sucked. No special schools, was basically socially promoted through his school career because he tried so hard. "But I still can't divide," he admitted.

Things like that warm my heart, how a virtual stranger is willing to open up to another virtual stranger solely by virtue of sharing (sort of) a learning disability. I don't have any outlandish expectations for David. I don't want him to grow up to be a doctor or a lawyer; I just want him to do something that makes him feel whole. And meeting Michael gave me hope.

Wednesday, January 9, 2008

To be of some use

It's been so long since I blogged that I forgot how to blog. But it all came back to me. Sometimes I think I also have an LD, directionally dyslexic, mildly dyslexic, or whatever polite phrase I can come up with.

A friend just told me that she's used this site about 10 times in the past 2 days. Another e-mailed a few minutes later, asking for a neuropsychologist's name. While I'm very happy this has been helpful to others, my heart aches in a way, just knowing what they will go through, remembering what an awkward, helpless, limbo-like spot I was in last year at this time while I searched for the perfect school for David. Lucky like hell that I found it, much poorer in the pocket but worth every penny because he no longer thinks/says, "I'm the worst kid in the world."

I can't help but wonder if we are being diagnosed to death. Back in the dark ages, when I was a kid and dinosaurs roamed the earth, we didn't have all of these LD's and acronyms. Does it have to do with chemicals in the environment, society pushing our children too hard academically instead of letting them be kids? But we didn't have this stuff when I was a young whippersnapper and I can't help but wonder why. But maybe we did, they just didn't have fancy acronyms.

I come across so many adults, mostly in the arts, who say they are dyslexic when I open up about David. They share with me how hard it was, that they were just promoted socially because they "tried so hard," and how great it would have been to go to a school like Mary McDowell. It's kind of sad, they've done well but they've had such a hard road. And like one fellow said to me this weekend, "I still can't do division."

Another challenge is grandparents (and others) thinking we're making something out of nothing, just hold him back a grade and he'll catch up. But they just don't get is that there is no catching up, not for them. We have to give them the tools to figure out their own coping mechanisms. They might never learn to think like us but at least they'll learn to think like them. Whoever that happens to be.

Our attorney tells us that the Dept of Ed is launching a pilot program to reimburse parents sooner. We just have to provide proof of payment (make copies of those checks!) and a payment affidavit from the school. They will supposedly pay us in a more timely fashion, whatever that means. Three months instead of six? I'm just happy they have agreed to reimburse (though the figure has not been agreed upon as of this date) at all and that we don't have to go to court.